I get her brain

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grasping to keep sane because I am seeing my daughter struggle the same way I struggled when it comes to learning. If I am curious…. I got this. I absorb it like a sponge… When it comes to math. I have no interest… It does not create any curiosity in me. I really don’t care what two plus two equals. I don’t even care that its always the same. It doesn’t fascinate me in anyway. Before she even understood what math was… she was oh…numbers…booorrrriiinnggg….My exact thoughts. It was such a hard thing for me to learn that I learned to hate it. It is not just that though. Our brain’s struggle to retain the information. This actually even applies to the stuff we absorb and seem to master. Two days later. That is like eternity and I seriously can not recall that conversation where you showed me how to do this. Its like I have had Mommy brain my entire life.

When trying to explain it to a friend, I explained it like this. If it takes a normal person thirty days to establish a habit, it will take someone with a learning disability at least ninety days. At this point I know realistically it will probably take me a hundred and twenty days to make something a habit. Even then I can loose it and have to start all over again.  Its like sometimes you have to teach me the beginning  and the end before I will be able to comprehend the middle. It is not entirely about the big picture either. You can try to keep teaching me in the correct order and its like banging your head on the brick wall. Teach me what happens in the end, it falls into place most of the time. The problem is I know this now, thirty years later. She is just starting.

It looks like she has a similar form of Attention Deficit Disorder as I do. It has tendrils of OCD but it doesn’t fit nicely into either category. Right now she is hitting a lot of the criteria for dyscalculia. There is enough wiggle room though. Its not quite just that.

We already monitor her diet. We restrict sugar as much as possible. I stay away from artificial dyes and preservatives as much as possible.  We use alternative medicine for treatment. She has seen only one psychologist and even then she was not the focus of the appointment. I had such a bad experience with being diagnosed I can still remember how teachers changed how they were around me. I can still remember the change in the way the other kids saw me. While I don’t see that being as big of an issue at a Montessori school. I still worry about it. I know how devastating it was to my self esteem. How hard I had to rebuild.

I know if I go through our insurance , which would be a deductible thing, they will miss it. She won’t fall into anyone “treatable” diagnosis. She will kinda fit multiple diagnosis and not really meet the criteria for one of them. I remember years of I.E.P meetings and hearing people talk about me and about how I learn or don’t learn. Remembering that they never once asked me to explain any of my thoughts. ever. They knew all the answers. When I did grasp something they said I didn’t and changed the way they were teaching me, again. I know because I remember struggling with the same things she struggles with. I get her line of thought before anyone else, because its mine. Not just because I am her mother. We have a very similar brain chemistry.

As much as this shatters me, I need to pick up my shattered pieces and figure out how to help her. How to help her without hurting her self esteem. How to help her without being a detriment to her as well. It may take me to the beginning of the school year. I have a friend who will help me with tutoring her. I have to keep myself together when I see her struggle the same way I did and take a deep breath and help her. Help her quietly and firmly and most importantly calmly. I have to set aside the anger at teachers who for the past school year did not listen. Did not see her struggling. It is done, I have to go forward.

I have to go forward with my mom intuition and be extremely picky on who tutors her , how and when. When we do get to a professional, I need to have all my senses engaged. I need someone who does not just intellectually understands learning disabilities. I need someone who gets it. Who follows her line of thought and understands how she got there. For now, we repeat math lessons over and over and over and over. For now, we work with what we have. For now.

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6 responses »

  1. I am exactly there with you I was a child with a learning disability still have it as a adult and now struggling with my youngest we now have the ADHD diagnosis but its like were trying to figure out this puzzle but all the prices are blank so we have to figure out what goes on each price then try to put the whole thing together and in the mean time my child is suffering he can’t help the way he is he can’t always control his anger and gets so down on himself when he explodes and his father and family on that side say its ally fault that I don’t correct himthat iI’m a bad parent I know that’s not it I have caseworkers and counslers and liaisons I meet with every week sometimes twice a week and they all know that my parenting is not the problem and I’m fighting for him in school and with doctors even his own dad I feel alone like know one is behind meor beside me but ythis blog let’s me know I’m not alone there others out there having the same problem thank you you’ve made me cry but its a good cry

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  2. Mom intuition is a very powerful thing. I knew something was going on with the way my son learned but the school system makes it their mission to deny, deny, deny. It was up to me and I was able to give him the tools he needed to succeed. I know you’ll do the same.

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    • The thing I find frustrating is they often say …..no child left behind or every child receives the help they need. But if their issue is borderline…not so much. Thanks!

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  3. Thanks for linking up at the TGIF Hop this week! I hope you can continue to find the strength to help your daughter. Personally, I have no idea what it is like having any type of anything, and just recently have been learning what it is like first hand being a caretaker to someone with Alzheimer’s. I will have to make sure I check back often in the hopes of learning something!

    Desiree @ completeblissblog.blogspot.com

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